aHUS (Atypical Hemolytic Uremic Syndrome)
It may be scary to find out that you or your loved one may have aHUS. Although aHUS is a life-threatening disease, learning about your disease is important. The more you know, the better you can manage it.
Here are some key facts about aHUS:
- aHUS is caused by genetic problems in the complement system, which is a part of the body’s immune system
- aHUS is important to diagnose accurately because it has signs and symptoms that are similar to those of other diseases.Differentiating aHUS from other similar diseases as soon as possible is very important
NATIONAL INSTITUTES OF HEALTH
Part of the US Department of Health and Human Services and a trusted source of research.
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
Dedicated to helping people with rare disorders like aHUS.
Encouraging patients and investigators to share information and explore options/resources, and work together to gain insight into this rare complement disorder.
Alexion-sponsored disease website for patients and healthcare professionals.