Speaking with your healthcare team about your condition and finding out what you can about the disease can be empowering and can help you understand how best to move forward.

OneSource is a complimentary, personalized patient support program offered by Alexion, and tailored to the specific needs of people living with aHUS, gMG, HPP, LAL-D, and PNH. We’re here to help you learn, and we’re here to help you understand the options available to you.

HPP (Hypophosphatasia)

Overview

Hypophosphatasia (hypo-fahs-fuh-TAY-shuh), or HPP, is a progressive disease with a lifelong impact. It is an uncommon disease, but it can affect men and women of any age, from infancy through adulthood. Some people with HPP are diagnosed as children, while others are diagnosed as adults.

Here are some quick facts about HPP:

  • It is progressive, so symptoms may get worse over time
  • New symptoms can appear at any age
  • People with HPP can experience signs and symptoms in their bones, muscles, joints, teeth, lungs, brain, and kidneys
  • HPP is often misdiagnosed as other more common diseases
  • It is an inherited disease that can damage bones and bodies

Resources

NATIONAL INSTITUTES OF HEALTH
Part of the US Department of Health and Human Services and a trusted source of research.

NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
Dedicated to helping people with rare disorders like HPP.

SOFT BONES FOUNDATION
Providing information and a community to educate, empower and connect patients, their families and caregivers.

HYPOPHOSPHATASIA.COM
Alexion-sponsored disease website for patients and healthcare professionals

Get Connected
1.888.765.4747
Or email us at OneSource@alexion.com

Get Started
Download the Enrollment and Authorization Form: English | Spanish

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