Speaking with your healthcare team about your condition and finding out what you can about the disease can be empowering and can help you understand how best to move forward.

OneSource is a complimentary, personalized patient support program offered by Alexion, and tailored to the specific needs of people living with aHUS, gMG, HPP, LAL-D, and PNH. We’re here to help you learn, and we’re here to help you understand the options available to you.

LAL-D (Lysosomal Acid Lipase Deficiency)

Overview

LAL-D is a rare, genetic, progressive condition in which infants, children, and adults have an uncontrolled buildup of fatty material (cholesteryl esters and triglycerides) in their cells. This buildup can cause ongoing damage to their organs.

LAL-D is diagnosed in people of all ages, from infancy to adulthood. When seen in infants, LAL-D is considered a medical emergency that requires immediate treatment and can worsen very quickly. When seen in children and adults, LAL-D is progressive and, if left untreated, can lead to serious health problems that can occur at any time without warning.

Resources

NATIONAL INSTITUTES OF HEALTH
Part of the US Department of Health and Human Services and a trusted source of research.

NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
Dedicated to helping people with rare disorders like LAL-D.

LAL-D SOURCE
Alexion-sponsored disease website for patients and healthcare professionals.

Get Connected
1.888.765.4747
Or email us at OneSource@alexion.com

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