Speaking with your healthcare team about your condition and finding out what you can about the disease can be empowering and can help you understand how best to move forward.

OneSource is a complimentary, personalized patient support program offered by Alexion, and tailored to the specific needs of people living with aHUS, gMG, HPP, LAL-D, NMOSD and PNH. We’re here to help you learn, and we’re here to help you understand the options available to you.

NMOSD (Neuromyelitis Optica Spectrum Disorder)

Overview

Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare, relapsing autoimmune disease
that causes your immune system to attack your central nervous system. Uncontrolled
activation of a particular part of your immune system could trigger the next relapse
and people with NMOSD who test positive for aquaporin 4 (AQP4) antibodies have a high risk
of relapse. The complement system is a particular part of your immune system that
helps your body fight potential threats such as infection, but in NMOSD, AQP4
antibodies can lead to uncontrolled complement system activation that can damage your central nervous system.

Resources

Guthy Jackson
The Guthy-Jackson Charitable Foundation provides education and support to those wanting to learn more about NMOSD.

The Transverse Myelitis Association
The Transverse Myelitis Association (TMA) is a not-for-profit international organization dedicated to the support of children, adolescents, and adults with a spectrum of rare neuro-immune disorders.

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Or email us at OneSource@alexion.com

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